Saturday, September 26, 2009

Deaf Awareness & The Pointy Nurse

The Setup

So I think I have mentioned that we are in a MAJOR transition to a new nursing agency. Unfortunately these things take a bit of time to arrange. The doctor needs to sign orders, the new agency needs to find nurses to cover shifts; so lots of paperwork is happening behind the scenes. We hope to be switching in the next week or so.

In the meantime, our current agency is NOT really performing up to my expectations, which by the way have been seriously lowered. So that is not saying much. I know we are switching, but they don't (obviously) so when they offered to send a new nurse for training I played along, yeah sure send 'em down. This was my one complaint from my otherwise near perfect day yesterday, and of course it had to be from them. The nurse they sent out yesterday is still living in the Dark Ages.

If you have nursing care in your home, or know of anyone that does, then you have probably heard some horror stories. In the grand scheme of things, this story is not all that bad. I mean no one's life was threatened, there was no need for 911, but I think I rolled my eyes so hard they are still under the sofa.

The Attempt To Find A New Nurse

Nurse Ratchet X showed up at 6 am to train with our current weekend nurse. Having not had much sleep for the past 4 days I was really looking forward to sleeping in. Well that did not happen. I was woken up at 7:something AM to "meet" the new nurse. I was not a happy camper.

So "blah,blah,blah..." she runs down her list of qualifications while I rub my eyes. And I am thinking, I got out of bed for THIS? Once she finishes patting herself on the back the run down of her resume I think, okay I should ask her a few questions. But I haven't had my coffee or even gotten the chance to look in the mirror yet and I am not really in the mood for this so early. Actually something in the tone of her voice kinda irritated me, but I couldn't put my finger on it.

The Problem

I started with an easy question. One of the standard questions I ask the new nurses is if they are willing to learn sign language. Austin does have words, but he really uses A LOT of signs to convey what he wants throughout the day. Thus far all of his nurses have learned some signs right along with him, without issue.

Well, lo & behold she had an issue with it.

She scrunched up her face, paused, and asked "is that a REQUIREMENT?" To which I, sharply inhaled, collected my thoughts and replied, "No, it's a recommendation." When in my mind, I am thinking something along the lines of YES, you imbecile of course it is required! I explained that Austin uses sign language to communicate his wants & needs. If he is hurting he can tell you where, if he wants to play with a certain toy he can tell you which, etc...

She then retorted that she was a NURSE, she had been a nurse for 26 years, SHE would know if he was hurt. He didn't need to tell her, THAT was her job to know. (Implication: she was here to be his NURSE, nothing more.) So I said, 'Yes, I understand that, but as such you are also required to attend to his Psycho-Social Development, which includes play. It would be helpful to know some signs to facilitate that aspect of his care.' Or something along those lines. But I got the look, you know the one that says - You are ONLY a parent, what do you know? How dare you tell me how to do my job.

The Part Where I Realize I Am Wasting My Time

I could tell she was coming unhinged and I began to enjoy myself. Now I was awake; this was better than caffeine! (Bad Mommy)

She got all hot & bothered and stated that she had worked with Deaf and Non-Verbal kids before (because everyone knows they are one in the same - all Deaf kids are non-verbal and all non-verbal kids are Deaf, DOH!); she knew how to do it.

So that, of course, begged the question, "how did they communicate their needs to you?" And she said, "well, if he (Austin) wants something he can just point to it." Or maybe, he can just take her hand and lead her to what he wants and then of course use more pointing. Yes, exactly. Why didn't I think of that?



All these months of learning and teaching signs, using AVT, having a DHH teacher come to the house, traipsing to and from the John Tracy Clinic - it was all for naught. For that matter why even go through all the trouble of getting him a hearing aid or BAHA at all? Think of all the time and money I could have saved myself and the insurance company. I should have just focused on POINTING and guessing. That is how Deaf people get through life, right?

What more was there to say than, please allow me to point you to the door. Don't let it hit you on the way out!

This is Deaf Awareness Week, please help yourself to some information.


Thanks for peeking,

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10 Peekers:

Shauna said...

"What more was there to say than, please allow me to point you to the door. Don't let it hit you on the way out!"

Bwahahaha! Love it! We're still looking for a nurse and I'm *thisclose* to getting brave enough to kick them out before they even start. I've always had the "at least give them a shot" mentality. We have one meeting with us on tuesday...we'll see how that goes. ;-)

But seriously though, how hard is it to learn 10 or 15 signs? I remember when Adrian would learn that much in a DAY.

Lisa said...

I love this post, you had me laughing my arse off!

Too funny.... think of all the time you could have saved....c'mon now pointing is the universal language.

I may have to retract and tell Gage to forget about all the signs we have learned and get him to use the universal point for everything.
Suction-point to trach.
Where does it hurt? - point to area.

Good Lord, thank the heavens above you are going with a new agency!

Did you find your eyes yet?
Tee-Hee!

Best,
Lisa

Colleen said...

I'm sorry you had to deal with the know-it-all nurse. What a waste of time and eye rolling. LOL.

After all it was a simple request to have her learn how to communicate with your boy....for crying out loud it's not like you wanted her to fly to the moon.

We've had to deal with a couple of nurses where I couldn't wait to tell the agency "Pleeeeeeeez don't send them back!"

Creepy said...

Ok, nurses suck. And I'm allowed to say that cause I'm a nurse ;)

And apparently I'm the WORST Deaf kid mommy ever cause I didn't know it was Deaf Awareness Week.

Off to plan some posts for this week.

Janis said...

Cristin,

Trust me you are not the only one. I guess someone did not do a good enough job promoting it, because I swear I only found out Friday night. I am guessing it was aimed at mainly Deaf adults, gee thanks!

Creepy said...

yeah... I figured I'd get something sent home from his school or something. And it was LAST week! Oh well, I'll post something anyway.

Karin said...

Did you seriously fire her before she even started? Yay for you! I never had the guts to do that, but boy I should have a few times.

I once had a nurse that had this philosophy: bar soap was bad because it held germs, but liquid soap was no good, and sanitizer was no good.

Waaaahhhh??????

Love your blog!

Rachel said...

Holy Cow!

Is there really any more to say? Jeezum Crow.

I think you handled it quite brilliantly ;)

Marcela said...

Oh my!!!

We do signing here at home because although Audrey can say a lot of words.... we don't want her to have to point at EVERYTHING she needs! We want her to communicate!!! So sad all the bad experiences you've had.

It is sad so many of you with special needs are going through this with nurses.

Louise Sattler said...

I have heard many stories, such as your own. I wanted to let you know that many state and private agencies are now looking at Signing Families to help train healthcare providers, educators and EMTs to use sign. We hope that our efforts will eradicate stories, such as yours and be replaced by ones that start with..."Guess what, a healthcare provider who knows basics of sign language is embracing my child and his needs!"

Thanks for sharing!!

Louise Sattler
Owner of SigningFamilies.com

 

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