He has been doing really well with food or drink offered to him and continues to favor things like shredded cheese and chips. He is a little salt lick , just like his mom. {I'm so proud!} You'll see in tomorrow's post just how far he has come with food.
Now mind you I said he is doing well, translation: he is not pitching food or beverages across the room {often.}
Lately we have been focusing on drinking. Just like every parent who has a child with dysphagia, we have an array of once used sippy cups. We have an arrangement, Austin & I. I scout out sippy cups and purchase them; Austin tries them once and then they go to the used sippy cup lot. The lot is FULL! We have tried them all, straw, no straw, valve, no valve...open, shut and upside down cups. So you get the idea. We had a similar arrangement with bottles, back before his tube feeding days.
Currently we are focusing on using a Nosey cup. This cup is a special plastic cup used often in feeding therapy. It is measured appropriately {one ounce of liquid} and has a cut out for the child's nose area. The special cut out is essential because otherwise a regular cup might cause Austin to tilt his head back too far and attribute to aspiration.

During a recent therapy session I was able to capture some video of him drinking from a Nosey cup. WOOT!
All of this preparation will come in handy for his next swallow study, which has yet to be scheduled.
Thanks for peeking,

Photo courtesy of Talking Child













4 Peekers:
that is just amazing!! you know maybe you should design some special cups and market them for extra money! you are so patient and clever and you know what you are needing in a cup, just ask Austin. this is an extremely under served market and you would be awesome with it.
this is just an amazing post and Austin is just wonderful.
Janis,
I know very well the trials and tribulations of this very topic you speak of. It was absoloutely at moments a hair pulling experience.
I know very well of what you post.
Looks like you are going in the right direction and he seems to be doing rather well.
COngratulations Austin!
Best,
Lisa
Ah Ha! I've seen those in the therapy shops and wondered how the heck they were supposed to help. Thinking that you drink from the smaller side, I thought why not just use a smaller cup?! NOW I GET IT! You drink from the tall side! I might have to get me one of those. (Although we still need a lid.) Austin is doing GREAT!
Hi,
I found your blog and wondered if you had heard of the Oley Foundation. We offer free information and peer support to families like yours with a member on home tube or IV feeding.
Check out our web site at www.oley.org. For a good overview, click on the "New to Oley" button.
We've recently posted a bunch of resources for parents trying to wean their child from tube feeding. Check them out at http://www.oley.org/tubetalks.html (you'll need to scroll to the bottom of the page)
Feel free to call/email me if you have any questions or would like to meet another family in a similar situation.
Warm regards,
Roslyn Dahl
Oley Foundation Staff Member
dahlr@mail.amc.edu
(800) 776-OLEY
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